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Sorry to pry, but may I ask which neuro-muscular disease you're referring to? A bit fascinated by the inability of many doctors to make proper diagnoses when dealing with neurological issues.



Stiff Person Syndrome.

It is extremely rare and occurs in only about 1 in 1 million people.

https://en.m.wikipedia.org/wiki/Stiff_person_syndrome

For this particular illness, 6 years is the average amount of time it takes to diagnose. Just to help put it in perspective.


Thanks for indulging my curiosity, have heard of it believe it or not.


No worries. It's no big secret for me. Most people don't know what it is; I even got a blank stare from an ER doctor once when I was taken in during an extremely bad episode.




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