In June the hospital decided he had aged-out of pediatrics and transferred him to adult care, where the doctors and nurses were not trained to deal with severely disabled patients—because they didn’t usually live this long and because, to be honest, they were not profitable. The doctors and nurses botched routine procedures but blamed the hole in his gut on the group-home nurses. Everyone disavowed responsibility, which did nothing to close the hole.
My mother stared down at the age spots on her hands. “I want him to die with dignity,” she said. “I want to save him from future pain. They’ll tech him out. They’ll torture him. I think I’m just quitting and he’s not, but that’s not true. He’s ready to go, too.” Her voice broke. “I just feel like I’m killing my child.”
It's a very poignant piece about a family with a severely medically disabled member as told by his twin brother.
Yeah... been spending most of a lazy day reading random HN comment threads and the article if it seemed interesting enough, and then read this one. Powerful stuff.
lol that is the worst tldr ever. It is about someone born with profound retardation due to brain injury and who later dies due to his disability as an adult, and the attempt of his brother to communicate with him.
but i thought it had something to do with crypto currency seeds
My mother stared down at the age spots on her hands. “I want him to die with dignity,” she said. “I want to save him from future pain. They’ll tech him out. They’ll torture him. I think I’m just quitting and he’s not, but that’s not true. He’s ready to go, too.” Her voice broke. “I just feel like I’m killing my child.”
It's a very poignant piece about a family with a severely medically disabled member as told by his twin brother.